{"id":351,"date":"2012-04-29T10:10:29","date_gmt":"2012-04-29T10:10:29","guid":{"rendered":"http:\/\/helpmeinvestigate.com\/health\/?p=351"},"modified":"2021-10-22T07:05:01","modified_gmt":"2021-10-22T07:05:01","slug":"unearthing-some-trends-in-the-organ-donor-register","status":"publish","type":"post","link":"http:\/\/helpmeinvestigate.com\/health\/2012\/04\/29\/unearthing-some-trends-in-the-organ-donor-register\/","title":{"rendered":"Unearthing some trends in the organ donor register"},"content":{"rendered":"<p>Since <a href=\"http:\/\/helpmeinvestigate.com\/health\/2012\/04\/25\/giving-data-depth-analysing-the-nhs-donor-register\/\">I last posted<\/a>, I\u2019ve been immersed in donor data \u2013 trying to tease out some interesting trends and perhaps, more importantly, attempting to find out what\u2019s behind them.<\/p>\n<p>I have data going right back to the computerised register\u2019s inception in 1994. And without too much investigation, I can see that take-up has massively plateaued in the last three or four years; a huge peak in the mid-90s has calmed to a mere undulation, even with extra publicity for the register and the mushrooming of joining methods.<\/p>\n<p><!--more-->1999 was an anomaly year, where the number of new joiners completely collapsed. Now, if there\u2019s one thing I\u2019ve learnt since I started my data journalism studies is that a weird result, an outlandish pattern can\u2019t be taken at face value. There\u2019s normally a reason for it. And it didn\u2019t take me long to find one in this case \u2013 a software error, which was <a href=\"http:\/\/www.guardian.co.uk\/healthcare-network\/2011\/aug\/30\/organ-donor-register-nhsbt-dvla-errors\">widely documented<\/a> in the press.<\/p>\n<p>Another stand-out observation is that people aged under 35 comprise the lion\u2019s share of the register. However, this requires another pinch of statistical salt. Age is given as \u2018age at registration\u2019 &#8211; this remains static, though our real age doesn&#8217;t. I will have to look at age of new joiners each year, rather than cumulatively, to get a true measure of the break-down.<\/p>\n<p>Three more quick things I\u2019ve noticed&#8230;<\/p>\n<ul>\n<li>of all regions Scotland, as a proportion of its total actual population, is best represented<\/li>\n<li>people on the register are less likely to want to donate their eyes compared to other organs<\/li>\n<li>and sign-up through the DVLA is the most popular source of membership. This, I would wager, is because people are obliged to make a decision. It\u2019s human nature to put things off until prodded<\/li>\n<\/ul>\n<p>Finally, to humanise what I\u2019ve found, I\u2019ve tracked down a case study. She\u2019s a friend of a friend who had a liver transplant last year, after being diagnosed with cancer. Unusually she received a liver from a \u2018non-heart beating donor\u2019; this technique had been abandoned in the 70s but has been revived of late to combat the chronic shortage of organs available for transplantation.<\/p>\n<p>It\u2019s no surprise, given her experiences, that she is extremely passionate about boosting register numbers. She pointed me towards some work <a href=\"http:\/\/www.mirror.co.uk\/news\/technology-science\/sir-richard-branson-why-my-friend-is-dying-278157\">Richard Branson<\/a> has recently done to raise awareness and of this, one statement stands out&#8230;<\/p>\n<blockquote><p>While 90% of the population support organ donation, just 29% are officially registered<\/p><\/blockquote>\n<p>I refer you to my earlier statement about human nature. Perhaps the biggest break on the register is apathy, something my dataset won\u2019t (unfortunately) reveal.<\/p>\n<div class=\"tweetthis\" style=\"text-align:left;\"><p> <a target=\"_blank\" rel=\"nofollow\" class=\"tt\" href=\"http:\/\/twitter.com\/intent\/tweet?text=Unearthing+some+trends+in+the+organ+donor+register+http%3A%2F%2Fhelpmeinvestigate.com%2Fhealth%2F%3Fp%3D351\" title=\"Post to Twitter\"><img class=\"nothumb\" src=\"http:\/\/helpmeinvestigate.com\/health\/wp-content\/plugins\/tweet-this\/icons\/en\/twitter\/tt-twitter.png\" alt=\"Post to Twitter\" \/><\/a> <a target=\"_blank\" rel=\"nofollow\" class=\"tt\" href=\"http:\/\/twitter.com\/intent\/tweet?text=Unearthing+some+trends+in+the+organ+donor+register+http%3A%2F%2Fhelpmeinvestigate.com%2Fhealth%2F%3Fp%3D351\" title=\"Post to Twitter\">Tweet This Post<\/a><\/p><\/div>","protected":false},"excerpt":{"rendered":"<p>Since I last posted, I\u2019ve been immersed in donor data \u2013 trying to tease out some interesting trends and perhaps, more importantly, attempting to find out what\u2019s behind them. I have data going right back to the computerised register\u2019s inception &hellip; <a href=\"http:\/\/helpmeinvestigate.com\/health\/2012\/04\/29\/unearthing-some-trends-in-the-organ-donor-register\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":11,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":[],"categories":[6],"tags":[216,215],"_links":{"self":[{"href":"http:\/\/helpmeinvestigate.com\/health\/wp-json\/wp\/v2\/posts\/351"}],"collection":[{"href":"http:\/\/helpmeinvestigate.com\/health\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/helpmeinvestigate.com\/health\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/helpmeinvestigate.com\/health\/wp-json\/wp\/v2\/users\/11"}],"replies":[{"embeddable":true,"href":"http:\/\/helpmeinvestigate.com\/health\/wp-json\/wp\/v2\/comments?post=351"}],"version-history":[{"count":28,"href":"http:\/\/helpmeinvestigate.com\/health\/wp-json\/wp\/v2\/posts\/351\/revisions"}],"predecessor-version":[{"id":381,"href":"http:\/\/helpmeinvestigate.com\/health\/wp-json\/wp\/v2\/posts\/351\/revisions\/381"}],"wp:attachment":[{"href":"http:\/\/helpmeinvestigate.com\/health\/wp-json\/wp\/v2\/media?parent=351"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/helpmeinvestigate.com\/health\/wp-json\/wp\/v2\/categories?post=351"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/helpmeinvestigate.com\/health\/wp-json\/wp\/v2\/tags?post=351"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}